28 Sep: 2.07 kg today and taking 25 ml of EBM every 2 hours. She still gets desats particularly after each feed, which means she still has that reflux that disrupts her breathing.
29 Sep: Weight is at 2.085 kg. Milk feed is increased to 26 ml every 2 hours.
Dr EK Ong returned from his conference in Taipei and called for a series of blood tests to check on my lil’ one’s situation. The tests include full blood count (FBC) (particularly to check if she is still anaemic as it is another reason for her breathing issues), blood gas (check on the carbon dioxide levels in her bloodstream) and the Urea & Electrolytes .
The tests results turn out ok except for the blood gas one. Her CO2 level is still high in her bloodstream as it has been accumulated for some time and it will take awhile for the CO2 to dissipate.
He has also called for a chest X Ray to be done, and hopefully it will be good news.
My aunty sent me a message to say that she managed to speak to Dr Ong early in the morning when he came by to check on our lil’ one. She suggested that perhaps my Feisty Fighter could be taken out of the incubator and onto a cot with the oxygen hood over her head. That will really help cut the daily costs per day into half and stretch our money a little more.
D spoke to Dr Ong later in the afternoon as I wasn’t able to get to my phone when he called earlier. Dr Ong also mentioned he would be putting her in a cot, just like what my aunty suggested. When I heard that, I was looking forward to seeing my lil’ one later in the evening since that new bed arrangement will be more convenient and allow us to talk and touch her more freely.
However when I got to the NICU, she was still in the incubator. Instead of being on a cot, she had something new. A nasal cannula for her to breathe in the good old oxygen.
The NICU nurse told me that my Feisty Fighter fussed and fought when they tried to put in the cannula into her nose. She absolutely hated it, according to the nurse, and she cried big time. By the time I was there, she was sleeping. I guess, all that drama just tire her out and she had to just live with the new apparatus.
There seems to be a lot more babies in the NICU yesterday and today. Some look really small, but on closer look at their info tags, my baby’s birthweight is still the lightest. I can feel their parents’ worries and fears when they come to the ward and sit by their precious child. It feels like just yesterday when I felt that same intense “First Day” experience. But now, it’s almost 60 days, my lil’ one has been in the hospital for close to 2 months already. How time flies, although there were days when time just crawled.
I’m hoping this long tunnel will end sometime soon. I am still waiting to see the tiny pinhead-sized light at the end of the tunnel and that it will get bigger till the light engulfs us as D and I step out of the NICU door, out of TMC and into a sunny day with our baby girl.
30 Sep: Only gained 5 grams and now 2.09 kg.
And still in the incubator. I suppose it’s cos the NICU is very much full-house right now, and Dr Ong wants to make sure our lil’ one doesn’t get unnecessary infections from some of the newcomers.
Our Feisty Fighter has been doing a number of stretches and that turns her whole face red and her breathing quickened. Sometimes her chest doesn’t show any movement, it’s as if she stopped breathing momentarily. When that happens, I will look intently at her monitor and hope that the alarm doesn’t start beeping.
Seems to me that she is more comfortable with her nasal cannula now, although my aunt did tell me that she was very restless the previous night, her first night with it.
Her chest x-ray showed an improvement from the previous one when we first found out she had BPD. That’s something to be happy about. 🙂
Thank God for little blessings.